I was planning to share a kids activity on the blog today because it was something I’d already prepared and had succumbed to yet another cold (why does it always happen during holidays?) I also took a pretty nasty fall down a flight of timber stairs at my parents house and so I’m nursing my aches and pains.
While resting up on the couch last night, I was watching 60 minutes and a story about a disease called Progeria. This disease makes children age at 80 times the normal rate, it stiffens their blood vessels and causes heart problems and other problems old people face like dislocation of joints.
Tara Brown spoke with a gorgeous 17-year-old girl named Hayley who is the oldest sufferer of Progeria. Hayley is just like any other 17 year old. She loves boy bands and music but her mother always wonders how much longer she’s going be around.
Tara also spoke to a wonderful doctor, Doctor Lesley Gordon, who is on a mission to find a cure for the disease. She’s already found a way to make the Progeria sufferers blood vessels less stiff which is a great start. Dr. Gordon’s passion and determination to fight this disease was amazing because she had just lost her 16-year-old son to the disease, so her fight meant even more.
One thing Dr. Gordon said really answered a question I have always asked myself, “Would I be able to cope if my child was struck with a serious illness or disease?” I’ve never thought I’d be able to cope or find the inner strength needed and have always had the belief that there are special people put on this world that are able to handle challenges like this in life, not everyone can.
Dr. Gordon made this statement that really got me thinking:
“You don’t know how tough you are until it gets tough. You don’t matter, only the child matters and you will pull everything out of yourself and keep on going.”
This statement was so important to hear because as parents, whether it be in everyday parenting or through really serious and tough challenges, we always seem to doubt our abilities.
And as for these truly amazing children and parents in this story, well, they have inspired me and most certainly made me very thankful for the healthy child I have.
Here’s a shortened version of the story:
Image from Alvimann on Morguefile.com